Success Stories

Diana Wilson

Happy memories spring to mind, recalling the excitement – aged seven – of helping my father rescue lambs from the floodwaters, without feeling I was wholly responsible for their wellbeing. My childhood was so carefree that it is ironic that I would soon develop a heightened sense of responsibility towards those I loved dearly, to keep them safe from harm or even death.

The following year, terrifying thoughts had begun to impact my view of how the world really worked and obsessional thinking would remain with me until the age of thirty-five. This persistent persecution became regular.
The impossible task of trying to understand my unwanted and terrifying thoughts of my baby and children was exhausting.

There were many different obsessional fears about harming my beloved children and others. I could barely cope with existing, let alone living. If only I had had the wisdom of a Health Visitor or Midwife to probe a little further into ‘why’ in their eyes, I was feeling depressed. How I wanted to hear “If you are sad or frightened we are here to help. What you have is an anxiety disorder called OCD and you are not capable of harming your children. Harming loved ones actually goes against the grain of the disorder; fact!” The core thought was always to protect my children.

The adrenalin fuelled rushes of fear gave extra strength to my beliefs. I assumed that because I could conceive them, I must be capable of carrying out such acts – or perhaps really had done.

How far from the truth I had been. I was to discover that sufferers never act on their thoughts. This is what I saw clearly after my treatment began. I shall never forget the constant kindness and respect shown to me by my GP, Health Visitor and Psychiatrist who gave me the assurance (never reassurance) that with the appropriate help I would reclaim my life back.

My life would have been so different had I been diagnosed two decades earlier. If I only knew then, what I know now about Cognitive Behavioural Therapy. After twenty-six years of the disorder just five sessions of CBT, homework between sessions and an SSRI was all it took for me to be given back my life. However, most sufferers will require varying hours of treatment but I am not alone in responding well and quickly to therapy.

CBT gave me the techniques to help me to trust myself when feeling under threat. I learnt how to distinguish an obsessional thought from a valid fear. I was able to recognise the ways an obsessional thought would enter and appear in my head.
A therapist can demonstrate that our obsessional themes are not a true representation of who you are as a person. They are in fact the opposite. You can be trained to not react to terrifying thoughts. You can start to make sense of the cruel and chilling ruminations.

A key to recovery is having a therapist who is properly trained. Mine had a good understanding of OCD and was up-to-date with CBT.

How grateful I am not to have had a mental health professional declare “Your OCD is too ingrained” or “You will just have to learn to live with it!” Poorly-informed practitioners are destructive, and I firmly believe that there is no place for such statements when treating this anxiety disorder.

It all begins with you contacting your GP; and remember, the greatest healer of all is yourself. I am living proof that full recovery is possible.


Maria Bavetta

 

Coping with OCD during motherhood was the most difficult experience of my life, recovering from OCD during motherhood was the most challenging and rewarding.

After the birth of my first child in 2004 I was overwhelmed and in fact crippled with anxiety – this led to extreme OCD. Initially, I was misdiagnosed with Post Natal Depression and inappropriately received talking therapy. Fortunately I was able to self diagnose and eventually access specialist perinatal OCD intensive Cognitive Behaviour Therapy which was the catalyst to recovery.

By the time I was receiving the right care I had developed rituals that were time consuming, exhausting and very unhealthy for me. My obsessions centred around protecting my daughter from any perceived harm. This is a very natural urge for any new mother however I took it to the extreme. I would stand at the sink washing her milk bottles for so long my hands would bleed. I was terrified if any germs were left on the bottles she would become ill – I thought I was being thorough, little did I know I was developing and making worse the OCD symptoms.

During the weaning stages I was petrified I would be poisoning her if I didn’t clean up properly. Hours and days were robbed as I cleaned obsessively. Throughout this time I was pulled in two directions: I wanted to give my precious daughter fresh nutritious food however was desperately trying to protect her from food poisoning so was obsessively careful.

I could write forever about the various rituals I participated in to protect her, however with the right CBT and the support from my family and friends I started to recover. It was tough for a long while and ever so exhausting, I had to face my fears and expose myself to situations I would be uncomfortable with i.e. not being 100% clean and acknowledge that we all love our children but need to give them space to grow and life comes with an element of risk. Some risks you can control some you can’t. I also now have a son, who is allowed to play in the garden and look for worms without having to continually wash his hands – this is a healthy approach to parenting.

For some people the fears may seem trivial, however the experience is as extreme as watching a child playing at the edge of a cliff.

There are times when I may be feeling vulnerable and I am extra kind to myself when life is particularly tough – this is to ensure if any mild OCD symptoms come knocking I am trained to know what to do.

Do I have times where I feel stressed? Yes, as we all do.

Have I recovered from OCD? Yes.

I now go to the park with the children without the intrusive thought of the children getting ill from stepping on dog faeces, without the worry of food poisoning when the children and I make homemade burgers, without the fear of contracting a disease when using public toilets. I can enjoy life without the obsessive fear of any harm accidently coming to my children.

This is the place every mother who is experiencing this anxiety disorder needs to get to. I want to help her arrive and say welcome home.


Ashley Curry

Hi I’m Ashley Curry a recovered OCD sufferer, and have been free of symptoms for the last 12 years, after 30 years of differential types of Obsessive Compulsive Disorder. .

Unfortunately like many OCD sufferers it took many years and a crisis point before I was formally diagnosed with OCD.

OCD took a horrid turn for the worse when my children came along as babies, and also during their early years, the overwhelming feeling of protecting them from harm, to the point of where I had feared I had harmed or abused them in the past – that was the point I couldn’t cope anymore

I eventually reached out for help, and was offered Cognitive Behaviour Therapy (CBT), the evidence based treatment for OCD. But alas OCD prevented me from attending therapy as I believed they would change the diagnosis and lock me away!

So I decided to study, and look into the way CBT works, along with ERP (Exposure Response Prevention) and applied the tools, worked at changing the way I was responding to the thoughts, both cognitively and then deliberate exposures took place, putting oneself into feared positions, allowing anxiety to increase along with the thoughts, but did nothing to try and eradicate that uncertainty.

There were slip ups along the way for me, that’s quite common in CBT, but with a good support network and family involvement, after 9 months I regained my life back from a horrible debilitating disorder.

One of the key aspects I feel was a diagnosis, as that explained many things. It explained why my brain was poorly, it also enabled me to obtain good knowledge and I cannot vouch enough the importance of that

So yes, success does and can happen. It really does, I am living proof!


Laura

In August 2011 I was bathing my son who at the time was nearly 3 years old. It was no different to any other bath time, except I was now in the very early stages of pregnancy with my daughter. For some reason the door was open and I could see my husband’s work tools on the side, I had a horrible fleeting thought of “What if I picked up a hammer and hit my son with it”, this absolutely disgusted me and I brushed it off as quick as the thought arrived.

Several days later my son fell down the stairs, and we ended up in A & E with him, thankfully all was ok, but the doctor’s pre warned me that social services would need to be informed. I think this was my trigger point, because that night I got in to bed, fell asleep as normal, (although slightly anxious about what had happened, and by the doctors words), to be awoken by an anxiety attack; I literally was struggling to control myself, I was in bits, I woke my husband up and he talked to me, reassuring me that the falling down the stairs incident was an accident and our son was ok.

But what I couldn’t tell my husband was that what was really upsetting me was the thought I had had several nights before about the hammer. This had come back into my head and was terrifying me…. My thoughts were “What if I had done it” “What if I did do it” “What if people found out I was having these thoughts” I was terrified that social services were going to come and take my boy away and tell me I couldn’t look after my babies.

The next few months were one of the scariest times of my life; I was so scared of myself, and did not want to be around my son, in case I did hurt him, and constantly had “What if” thoughts…

I remember sitting on the sofa in a ball rocking backwards and forwards scared and ashamed of what was happening to me. This was when my husband confronted me, and demanded I tell him what was going on, as the once semi confident, happy go lucky lady he met and fell in love with, was now a shaking wreck petrified of her own shadow. These were the hardest words I have ever had to say “I had a thought that I was going to hurt Riley” My husband just cuddled me, and said “it was only a thought, you’ve never actually hurt him” It was a relief to have spoken about it, but not enough to make me see that it was just a thought.

I visited the doctor who was amazing, and as soon as I sat in the chair I sobbed and explained everything that was going on, my thoughts, my anxiety, my waking in the night; some nights not even sleeping with worry. I remember the doctor saying to not be alone, and at the time my husband worked during the day and at an evening job, so my mum and dad would come over to be with me. Although I was round people I felt so isolated.

I was offered Prozac, due to being pregnant this would have been the best medication for me, however knowing I wanted my daughter to be born at home, I couldn’t take this as it would have classed me as high risk, and meant I potentially couldn’t have a home birth.

The doctor suggested I attend a CBT (Cognitive Behavioural Therapy) course, and have counselling, plus regular visits to the doctors to review my progress. It was also discussed that I may potentially need to be assessed and admitted to hospital.

I was ready for this, I wanted to be away from my son and home, and I wanted help. I expected a call to be called in straight away, but that call never came. I was not a priority; I was assessed for counselling, and started these in the January. I had 4 sessions signed up, which the counsellor extended to 8 weeks, by this time my daughter was only weeks away from being born. The counsellor wanted me to also let him know once she was born so more sessions could be booked.

I completed the CBT course, and found this ok, but struggled to absorb the information, I took my mum with me, so I had someone who could not only be with me to support me, but so could see and understand what was involved and happening.

The counselling sessions; at the time I thought were ok, and the counsellor supportive, but have since learnt that they did over step boundaries. They also never really helped me deal with the intrusive thoughts (I still at 6/7 months after the thoughts started, had no idea what intrusive thoughts were, and believed I was an isolated case with horrible issues)

I knew the doctor and counsellor were restricted with the help they could give me as I was pregnant, I continued to work and live life normally (as much as I could). Apart from the doctor, counsellor, my parents and husband, no body at the time knew what I was going through.

I signed up for pregnancy yoga, and found this really helped me relax, and teach me how to clear my mind of thoughts. I often found I fell asleep in these classes.
In April 2012 my daughter was born, at home, but now I was scared for not only me, but my son, and now my daughter… “What if I hurt them”? I remember nursing my daughter, and sitting on the edge of the rocking chair during the night, and literally shaking, concentrating so hard on her bedroom border, not even acknowledging her, and fighting the intrusive thoughts as much as I could.

Nights were always the worst, I was scared to fall asleep in case I suddenly developed sleep walking, and hurt my children without even being awake. I would wake my husband up to check on the children for me, to check that they were ok.
I couldn’t watch TV programmes with any murders or deaths as it made me so anxious. I couldn’t watch the news, as the negativity all the time played on my mind.

I couldn’t be on my own, as it petrified me, I remember calling my husband home from work several times, as I was so scared of myself, he had literally become my safety net, and I struggled to cope when he wasn’t around. I remember getting paint by numbers, and colouring books, to try and distract my thoughts, and getting so frustrated that they wasn’t helping.

After having my daughter I returned to the doctors, to now look into starting Prozac as the thoughts, and anxiety were not subsiding. I was now met with a new doctor, as the other one had left, and to also be informed that the counsellor had left the surgery as well. My world literally crumbled, I felt like I was taking 10 steps backwards. I had to restart everything again, I had to explain everything again to the doctor, and go through the whole counselling assessment process AGAIN, along with being told to re do the CBT course again. I literally sobbed my heart out, not only was my husband a safety net. The doctor and counsellor were too, and now two of these were gone!!

I had no choice but to go with the change, I couldn’t continue living with these thoughts, and being petrified of myself. I started taking Prozac, and initially they made my thoughts, and anxiety worst. I struggled to interact with people as my nerves were through the roof. I couldn’t tell people what was wrong, as I didn’t want sympathy or rolled eyes, so I just played rude and stayed away. It was easier this way.

My Health visitor would visit regularly, and encouraged me to attend parent/baby classes, I was keen to do baby massage, and after a little wait was able to do this class with my daughter, which I feel helped me and her bond. It was a safe environment and I was able to acknowledge her and not fear that I was going to hurt her.

After now 9 months of feeling awful in myself, low self-esteem, intrusive thoughts, and anxious, I was finally meeting with the new counsellor. She was lovely, and could see how nervous I was to have to talk through it all again, not knowing what it was that was happening to me, she encouraged me to talk, and to keep with the positive images when I was away from the counselling, she also encouraged me to revisit the CBT course, this also helped me with not just positive images, but positive thoughts. It was on the second week that the counsellor turned to me and said “you do know that what you are experiencing is Intrusive thoughts”, I had never heard of them before, and had been too scared to google my problems, in case social services did turn up (which they still hadn’t) and the police were called, and they saw I had googled “why I am I having thoughts of hurting my child”….

I enquired about intrusive thoughts, and the counsellor asked me if I had ever caught the train, to which I said yes, she asked if when the fast train goes through the station had I ever thought “what if I jump in front of the train”, I nodded. She then asked if I’d been to a theatre before and sat up high, I said yes, and she said sitting in the seats looking over the balcony, did you ever think “what if I fall/throw myself over” I nodded…. She was giving me other examples of intrusive thoughts.

That night I googled intrusive thoughts, and this was when I found the Maternal OCD site, it was like a New Year’s Eve celebration going off in my head, like the scene from Clueless, where Cher finally realises she likes the boy, and all the fireworks go off. I wasn’t alone, I wasn’t abnormal, I was going to be ok, I wasn’t going to keep letting this define me!!

I couldn’t believe in the 9 months I had been suffering with these thoughts, and anxiety that Intrusive thoughts hadn’t even been mentioned once to me!
I couldn’t believe and still can’t believe that the mind is such a manipulative tool, and even though it’s within your own body, it can turn against you. You have two sides of the brain fighting over what is real, and what it thinks could happen. You fight with yourself over these thoughts, and naturally your body will stand and fight them or run away from them (fight/flight response) I had spent 9 months running away from these, and believing I was a terrible mum for having these thoughts. I was not running anymore!

I attended the CBT course again, and this time really took on board what was being said, and enjoyed the time I had on the course. At the end I asked how I could go about becoming a counsellor, as I wanted/want to go on and study psychology and counselling, so I can not only gain further understanding of the brain, but so I can help others who suffer with perinatal OCD.

By my last week of counselling my thoughts and anxiety had reduced, not excessively, but I was able to fight them, now rather than backing down to them and running away from them, I stood with them, and challenged them “Go on then” and I would laugh out loud, I knew, and know, even now with the kids being older, and able to push more of my buttons, that I’m never going to hurt them.

The difference and what my husband said to me is “you have a thought, you don’t act on it, and you feel bad for having that thought, that’s ok, it’s different to the people who don’t think, just act, and don’t see it being bad, that’s not ok”.

In September 2012, just over a year from having my first intrusive thought, I signed up for a Counselling Skills course, I passed with a certificate in this by May 2013. This course helped me open up, talk, and listen to others. It has helped me gain confidence in myself, and to trust myself. I now openly talk about perinatal  OCD and anxiety, and acknowledge that I had/have it.

As the hours, days, weeks, months and years have passed, the thoughts have subsided, and occasionally I will become anxious, and have a fleeting thought, but I can always pin point the trigger, I will acknowledge it, but I won’t fear it anymore. Sometimes I even use the anxiety to push me forward.

I have continued to practise Yoga, and also mindfulness as I truly feel this helps switch my mind off from the overcrowding of day to day thoughts, and allows me to channel myself, and focus on what’s important. Me!

In May 2015 I had my 3rd child, I was lucky enough to have him at home as well, and got to spend a whole lot of time with him, and the time wasn’t spent in fear. I even did another baby massage course, and enjoyed it so much that I signed up to become a massage instructor, which I can proudly say I have now qualified for and I received my certificate in July 2017.

I hope to take up the counselling courses again soon, and go on to help mums, dads, babies, and children. I am now so proud of who I am, and without going through the intrusive thoughts, and anxiety, I wouldn’t be where I am today, I am taking on a whole new career path, and continue to challenge myself, by pushing my boundaries. I take each day as it comes, and at family meal time reflect on the positives from the day, each family member giving a positive from their day!

“Your mind is a powerful thing, when you fill it with positive thoughts, your life will start to change” author unknown.

 


Life Story No 1

Here at Maternal OCD we also welcome mothers who would like to share their stories anonymously, please see below an example:

My earliest memory of any OCD type behaviour was when I was a teenager. Following some bullying at school I developed a safety behaviour of obsessively checking my appearance. Everywhere I went I had to carry a small mirror held in the sleeve of my coat or within easy reach in my bag so that I could repeatedly and obsessively check that nothing was out of place. This behaviour went alongside issues with eating and self-harm but I did not realise until I was much older that this was all about control and was probably the beginning of my OCD.
OCD continued to be part of my life in a small way (doubting, checking doors were locked, straighteners were turned off etc) but not in a way that really affected my day to day life. I also suffered with social anxiety but, again, did not recognise it as being that until I was much older and learned about anxiety. I still lived a ‘normal’ life and went out and had fun but had all of the anxiety going on underneath the surface.

Settled in a relationship, it wasn’t until we started discussing moving house and starting a family that my OCD began to get out of control. It began with subtle things like fearing blood when it had never previously bothered me (I used to donate blood without even batting an eyelid at other people’s blood being taken around me). I began cleaning obsessively and prepared for the move by cleaning items such as books with anti-bacterial wipes, preparing myself for starting a family and not wanting ‘contamination’ to follow us to our new family home.

We started trying for a baby soon after moving into the new house and I was lucky enough to fall pregnant straight away but at some point my OCD blew out of control. By the time I was three months pregnant I realised that my OCD had become a massive problem and went to see my GP, unfortunately it took until after my baby was born for me to obtain the CBT I so badly needed. Confused and frightened by the situation my OCD grew rapidly worse during this time, my compulsions and rituals seemed essential for the survival of our unborn child so how could I possibly stop them? I spent endless hours cleaning everything including walls and doors, even when heavily pregnant, forever fearing a new contaminant and never getting the clean feeling that I so badly sought. I was left with bleeding hands, skin flaking on my face and body and a relationship near breaking point.

Thankfully after some time, an excellent CBT Therapist started me on my road to recovery and, although it took time to recover, I slowly changed from someone who could see real and definite danger in almost literally everything around me to someone who bit by bit gained the confidence to start facing up to my fears. Although it was terrifyingly anxiety provoking, I can still remember the immense feeling of achievement after I managed to open a few windows in my house an inch onto the latch to let in some fresh air, the windows had always stayed firmly closed before that because my fear of contamination would not let me open them. I was starting to take those first steps.

Recovery was a long process because my list of fears was so extensive but I can happily say that I have nearly completely recovered now and I feel confident that I will continue to improve. I have gone from being someone who sometimes felt that maybe suicide was the only way out of the constant torture I was enduring, to being someone who enjoys life and looks forward to what the next day will bring. I can look back now and view most of my compulsions as absurd and unnecessary, but at the time they most certainly felt terrifyingly real.

People that meet me assume that I am a confident, happy, lively person and yet they see no signs of the inner turmoil I may be going through. I think that is the danger sometimes with certain mental health issues, the stigma can cause you to hide what you are going through, but how can you possibly get the help and support you need from others if you are hiding all this anguish away? I was very lucky to have a wonderful family around me that I could be completely honest with but I was still always very aware that when it came down to it, it was only me that could get me better again, no matter how much they wanted to do it for me.

Taking baby steps towards recovery is all you can do, and then once the positive experiences and the sense of achievement begins then at least the wheels are in motion, from there you can continue to propel yourself forward. The crucial point for me was when I stopped punishing myself for having this disorder and started to be kinder to myself. The more you look after yourself and pat yourself on the back for even the smallest of achievements, the calmer you feel and therefore the stronger you feel to face the next challenge.

OCD does not have to be faced alone but it is only you in the end that can challenge it. I believe that with the right help and guidance every OCD sufferer can do this. Have hope!